PHILADELPHIA, Pa. – A Philadelphia woman was nearly 3 months pregnant when she found out her unborn son had a terminal brain defect.
A devastating diagnosis has proven to a Philadelphia couple that “each day must be lived to the fullest.”
According to WJW, Jenna Haley was just 13 weeks pregnant when doctors told her that her son had anencephaly, which is a terminal brain defect. The life expectancy of babies with the condition ranges from hours to days.
After hearing the diagnosis, Jenna and her husband, Don, put together a bucket list, taking Shane on lots of adventures while he’s still growing inside his mother.
They post their adventures and photos to their Facebook page, Prayers for Shane. The page has earned more than 260,000 followers.
Their adventures have taken them to the beach, museums, the Empire State Building, and Phillies games.
“We are asking for your prayers and support and that God grants us as much time as possible with our beautiful son,” they write on the Facebook page. “Shane has already proven to us that each day must be lived to the fullest and that is exactly what our little family is doing.”
Shane is due on Oct. 12.
*Article from KFOR News website.
So, so, so many nights I would lay awake in bed, unable to sleep, thinking about all the things I would never get to do with my first grandchild. I regretted that the only thing I ever had the chance to do was rub Stephanie's belly, and talk and sing to Abby within.
When we learned the twins were on their way, I was determined not to lose a minute of precious time. I attended every possible OB appointment with my daughter, and ultrasound photos lined the wall of my office at work...just in case I never had any other 'living' pictures. I rocked the twins with Stephanie on my lap, sang and read Scripture to them, and let them know the sound of my voice....even told them jokes! Haha!
Yes, we fully expected the outcome to be much happier this time around. Did everything we could to ensure the babies would live. But, there was that nagging thought in the back of my mind, "What if...?"
Well one day, the 'what if' did happen, and I was thankful that I took the time to rock my grandbabies while I could....even though it was while they were in my daughter's womb....even if it did look silly....because one day, the next time I rocked them, they were already in the arms of Jesus. Never let a moment slip away, live life to the fullest.